With it being Graves’ Disease Awareness Month and my Graves’ disease making an unexpected return after more than a decade of remission, it felt like the perfect time to share my personal journey and experience with this disease.
With Graves’ disease, your immune system mistakenly attacks your thyroid by producing antibodies that tell it to keep making thyroid hormone—even when your body doesn’t need more. This causes hyperthyroidism, meaning your thyroid becomes overactive.
That’s why people with Graves’ disease often experience symptoms like:
- Rapid heartbeat or palpitations
- Heat intolerance
- Unexplained weight loss
- Diarrhea or frequent bowel movements
- Tremors or shaky hands
- Anxiety or irritability
- Fatigue, despite feeling “wired”
- Muscle weakness
- Trouble sleeping
But how can you feel exhausted and restless at the same time? That’s because your body is essentially being pushed to run at high speed all the time, which can leave you feeling drained.
I was diagnosed with Graves’ disease in 2015. After 12 months of treatment, I was fortunate enough to go into remission, and for years it felt like I had my life back.
But recently, my symptoms have returned. I have every symptom that the disease entails and as a full-time working wife and mom raising three daughters, those symptoms don’t just affect me—they affect every part of my day.
Some days, getting through work feels like a marathon.
Some days, playing with my kids takes more energy than I have.
And some days, I look completely fine on the outside while feeling exhausted on the inside.
That’s one of the hardest parts of living with an invisible illness. People can’t always see what you’re carrying. Your body is attacking itself from the inside.
What I Wish More People Knew
Graves’ disease isn’t caused by stress alone.
It isn’t something you can fix by “just eating healthier.”
And it certainly isn’t something you can simply push through.
It’s an autoimmune disease. While stress, illness, and other factors may contribute to flare-ups for some people, living with Graves’ disease isn’t about a lack of effort or willpower. And the worst part about it is, it can flare up at any time. My Graves, disease flared up this month. Was a more stressed than normal? I don’t think so.. I mean hell, aren’t we all a little stressed.
If You’re Living with Graves’ Disease…
I want you to know you’re not alone.
Whether you’ve just been diagnosed, are in remission, or feel like your symptoms are returning, your experience is valid.
Listen to your body.
Advocate for yourself.
ASK QUESTIONS. Knowledge is power. The thyroid is a very complex organ, and can be difficult to understand.
And don’t ignore symptoms that don’t feel normal.
I’m sharing my journey not because I have all the answers, but because I know how isolating it can feel when your own body seems to be working against you.
If my story helps even one person feel seen, then sharing it is worth it.
Because life isn’t perfect—but it can still be beautiful.
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This post reflects my personal experience living with Graves’ disease and is not medical advice. If you’re experiencing symptoms or have concerns about your thyroid, please speak with a qualified healthcare professional.
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